Living with NarcolepsyThis section is a place to share stories about Living with Narcolepsy. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download Narcolepsy I had something that resembled narcolepsy. I say resembled because I still it is not good, but it is improving. Once in my life, I had a very strong stress. I don’t know whether people can die from stress, but I think that they can. It’s not important, it is not that before too I was some very healthy person (physically I’m healthy; but my psichology has always been bad. However, there were never attacs of sleep during the day. I was ‘a sleepy person’ - that is very slow movement and thought, always bored etc. but there never were ATTAcks of sleep during day. Then these stressful days came, and after them I had severe sleep attacks during days and nights. Because I didn’t know what’s the problem, I tried to resist, not to sleep; even I crawled on the floor, but I wasn’t able to stay awake. It’s ten years that I’m like that. Continually I was trying to resist sleeping, but there was no success. However, during this last year, I succeeded not to sleep during the whole night couple of times; and my condition improved. Once, after I was successful in staying awake whole night, I came home about ten oclock in the morning and fell to sleep (not having what else to do). In my sleep I heard a voice that told me ‘this seriously leads to final solution of the problem’. I don’t know was it because of my great desire that to be solved or some real ‘raport’, but since then I am much better. I bear not sleeping much easier. Still not cured, but much better. For ex. no I can go out with sb. and stay somewhere whole night, the sleep crise is not so visible to the others exept normal tiredness at night (it’s not normal, but the others now cannot see; former I was loosing breath and wanted to sleep in front of the others). I somehow managed and I will go to the end to see what happens. I will not sleep couple of times more. The longer I resist, the better. If I die, it’s not important. If I live, I will see the result. I have thought of using some drugs to help, but because I don’t know the effect, I thought it’s better not to experiment. I will try to resist finally without any drugs. That is my story. I don’t know what’s the cause and I don’t know is it real narcolepsy or sth. else. Comments
January 2009
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