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Living with Narcolepsy

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what do I have?
by: Tamara on Tue, Nov 11 2008
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I can date having the overwhelming urge to sleep back to Junior in High School after I had a severe case of mononucleosis. Since then, as said above I have had those uncontrollable sleep episodes. I have always felt “lazy” and why can’t I get up after dinner and do the dishes, etc. I thought it was just being a mom and trying to work.

The past 2-3 years it has been getting progressively worse until someone at work said they were concerned and I need to go to the doctor. I had barely made it to work that morning after a good nights sleep without pulling over to take 10 minutes to sleep. I have a 12 minute drive to work. I have been told that I skip stage 3 altogether never getting any restorative sleep.

My doc says he does not know why, I don’t have sleep apnea and no other signs of narcolepsy just EDS! My doc who has a passion about sleep disorders said he was going to have to research to see if he could help me. I’m on ritalin which allows me to function somewhat. Anyone else out there with a similar story or suggestions? thanks


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November 2008

  • Searching for An Explanation! - by Amanda - (Tue, Nov 18 2008)
    I am not diagnosed with Narcolepsy,(yet) but I’d like to share my story and receive some feedback from what I consider the true experts. You all. [more..]
  • cant help narcolepsy… - by steph - (Wed, Nov 12 2008)
    I am a senior in High School, I am 17 years old, and I have been living with narcolepsy for about 5 years now. [more..]
  • what do I have? - by Tamara - (Tue, Nov 11 2008)
    I can date having the overwhelming urge to sleep back to Junior in High School after I had a severe case of mononucleosis. [more..]

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