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Living with Narcolepsy

This section is a place to share stories about Living with Narcolepsy.

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So weird it’s not even funny
by: Melt* on Fri, Nov 16 2007
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I have take the time to share my story because like all of you, I get frustrated too by trying to make people understand what I’m going thru. Everyone starts laughing and tell me -”Does it happens like in the movies? Do you fall flat on your face?

I started noticing my situation at 14 or 15. I used to fall asleep in any class at any time, even the ones I really liked. Everyone, even the doctor, blamed it on adolescence and growth. Thru college I felt asleep in every corner of the campus and while riding the bus too, even if I was standing up. I remember fallin asleep in a couch at a club, everyone thought I was drunk;-(

The thing is that I can go on and on with my stories because this is something that you can’t control. I have weird dreams and this makes me get late to work, because when I’m finally getting some rest, it’s time to wake up. Talking about the dreams… it’s like living a double life.

If I try to figh it, I get really bad headaches, I feel like I have a mental cramp and my body I don’t want take medication because pills can damage the liver.

So my adivice to you is to enjoy every moment that you are awake and be patient because I know that there will be a solution soon.


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  1. Tue, Nov 20 2007
    i used to try and laugh about it myself and i began to grow more and more upset when other people had no clue how bad it really is. when people say co...Read

November 2007

  • medication works for me - by Alice - (Fri, Nov 30 2007)
    I too have narcolepsy. I have always fallen asleep in odd place, talking, riding a bus, while being intimate…but the medication works vry well for me. In fact, the medication has allowed me to [more..]
  • Narcolepsy has control of my life - by Amyalys - (Tue, Nov 27 2007)
    I feel as though this disorder has taken my life as I knew it away from me. I am disabled now. I can’t drive, can’t work, and am lucky on the days that I can walk with a cane without assistance. I am on medication but it doesn’t seem to help very much. [more..]
  • So weird it’s not even funny - by Melt* - (Fri, Nov 16 2007)
    I have take the time to share my story because like all of you, I get frustrated too by trying to make people understand what I’m going thru. Everyone starts laughing and tell me -”Does it happens like in the movies? Do you fall flat on your face? [more..]
  • 40 w/Narcolepsy since 15 - by Jo P - (Thu, Nov 01 2007)
    I am a 40 year old female and was diagnosed with Narcolepsy at 15 years old. I suffered thoughout my childhood with being extremely tired, especially after playing, often which resulted in dizziness or vomiting. [more..]

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