Living with Narcolepsy

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Can’t stay awake
by: GJM on Fri, Sep 21 2007

I am a 36 yr old who has been living with this disorder for some time. My father had the same problem but for years we always chalked it up to overwork and just being tired. To overcome this, I thought all I had to do was stay busy. Don’t sit down too long, sing when I drive, keep moving, keep moving. Cause the moment I sit down I get sleepy and have to fight the urge to close my eyes. Staying awake in class was impossible. Now, in trying to earn my degree, it remains a problem. The moment I open my books is like turning a switch. I am out like a light. Not long, but long enough. I have had the sleep paralysis and the weakness of limbs. Not often but often enough to scare me and my relatives. Although it scares us, I have never thought to seek help. Always chalked it up to just overdoing it. I do not know what to do. No ideas how to overcome this. My father lives with this. Seems to be doing fine. But I can not continue like this. Any thoughts? Ideas?

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Mon, Nov 19 2007
This was me before my diagnosis. I thought that I was just tired for years. Everyone said " well you are a wife and mother and you work full tim...Read
Sun, Oct 21 2007
You need to go to a sleep disorder doctor and get a diagnosis and medication.I have been diagnosed for about 4 years. I always thought it was because ...Read
Wed, Sep 26 2007
I am a 37 year old with the exact same problem & have always had the exact same thinking. I always thought I was just tired. I can never watch t...Read

September 2007

Gone too far. - by Lori - (Mon, Sep 24 2007)
During one of my episodes I drove my vehicle got into two accidents and eventually 4 hours later I drove my vehicle off the road,strangers got into my car, my dogs were in my vehicle initially but I was told I let them run in a field. [more..]
Can’t stay awake - by GJM - (Fri, Sep 21 2007)
I am a 36 yr old who has been living with this disorder for some time. My father had the same problem but for years we always chalked it up to overwork and just being tired. To overcome this, I thought all I had to do was stay busy. Don’t sit down too long, sing when I drive, keep moving, keep moving. [more..]
My teenager son has narcolespy - by LS - (Fri, Sep 21 2007)
My son was diagnosed with narcolepy when he was 11 he is now 15. I wish their was a better medication or more research done with kids & teenagers. School is really difficult trying to keep him awake in classes, he falls asleep. [more..]
NARCOLEPSY - by AJ KIRK - (Thu, Sep 20 2007)
I WAS DIAGNOSED WITH THIS DISORDER ABOUT 3 YEARS AGO. I HAVE BEEN ON PROVIDGIL, BUT IT IS NOT BEGINNING TO WORK BECAUSE OF THE MEDICATIONS I HVE BEEN ON SINCE HAVING MULTIPLE SURGERIES. [more..]

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