Living with Narcolepsy

Where did I GO? I have Narcalepsy [narcolepsy], Cataplexy, Fibromyalgia, Myofascial pain & a few more problems. I was top in my field of work, making $80,000.00 a year. I started passing out, stayed in such severe pain in my back,neck, lower back,legs,etc. Then I couldn’t manage the computer, I would forget everything, & I would just cry my eyes out. I worked for a Corp. & to them I was just a #. Needless to say, I had to resign or get fired. I went to all the right Doctors, got these horrible results. I screamed at them that they were lying, & then I hid in my house for a year. I applied for Disabiliy [disability], was turned down twice & now I have hired a Lawyer. I had to sell my home of 35 years because I ran out of money. Along with all that there was the awful time with my girls & my family. Are you on drugs? What is wrong with you, you already told me that story 3 times, Why aren’t you working? It was the most horrible time I have had. No one believes you about anything. i can’t even see any of my friends because I don’t remember their names or because I am embarrased. Where is the Woman that I knew? The one that was full of laughter, top in my line of work, everywhere I went I was known.

Why can’t the doctors keep me out of pain? No one should hurt like this every minute of their life. But The old me was a fighter, & that stayed with me. My faith in God got stronger when I remembered. My girls after 2 years are now my biggest support group. I take my life by the minute now. I am having trouble driving now. I take a very strong depressant that has helped so much. There is so so much more that is in my story but I am getting forgetful. My advise is good Doctors, fight for Disability, & let God lead you. I still hide in my 500 sq ft home. But I pray for good days.