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Living with Delayed Sleep Phase Syndrome

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DSPS with Epilepsy
by: Richard on Sun, Jan 11 2009
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Hi to all readers,

I was first diagnosed with epilepsy at age 12, and although I have we it figured out that my condition was based on sleep. If i didn’t sleep enough in any giving night, I would have a seizure shortly after waking up. Which was ok because I was a morning person and would wake up every morning at 7am happy, jumping in the shower and starting my day….

I was properly controlled my meds, and never had a problem with my eplipsy until my last year of high school. I was 18-19 and start having problms and almost didnt graduate highschool (a teacher that taught parenting seen what i was going through and gave me a 50% just to get my final credit)

I tried college and university aftwards, but the DSPS was worse by then, plus I did not know what was going on. Many trips to the doctors and all they kept telling me is I am suffering from depression and wanted me on paxil and clanozopam and whatever else. I was refusing to take the meds because I knew I just couldn’t get to sleep until 5-7am.

When I finally diagnosed with DSPS I had something to learn, and it has been an uphill battle ever since. As many of you in relationships realize how hard it is when you go to bed 5-7am and everybody from friends to family telling you “must be nice to sleep all day” or “all you do is sleep”

But this last year in a half has been a rebirth for me. Im engaged to a wonderful woman who understand what I am going through, and works with me on it. I have also became partners in a business ( Im not sure if i can say what type so I will leave it blank), and it works great because my partner handles all the day to day things during business hrs like meetings ( I attend them when Im awake during business hours of course) but when I am up and nobody is around I get alot of work done so my business partner has more time bring back work to clients, or getting more clients.

I still get upset when I miss out on family gatherings or some other things, but I also am happy to realize that things are starting to turn around in my life :)


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January 2009

  • My 13 yr. old son has DSPS - by Dana - (Wed, Jan 21 2009)
    For a year and a half now my son has struggled with falling asleep. It became worst at the start of 7th grade. By the end of october 2007 i took out of school as he begged me to homeschool him. [more..]
  • DSPS with Epilepsy - by Richard - (Sun, Jan 11 2009)
    Hi to all readers, I was first diagnosed with epilepsy at age 12, and although I have we it figured out that my condition was based on sleep. If i didn’t sleep enough in any giving night, I would have a seizure shortly after waking up. [more..]
  • Rearanging the Average Day - by Travis - (Fri, Jan 02 2009)
    For years I always struggled with “day people” who would accuse me of being lazy or say “must be nice to sleep all day.” [more..]

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