Healthcommunities.com
Home Search SiteMap Forum Store Physician Board

Living with Delayed Sleep Phase Syndrome

This section is a place to share stories about Living with Delayed Sleep Phase Syndrome.

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

You may also Help others by sharing your story.

To quickly access health information from your website's browser, download
Healthcommunities.com's healthchannels toolbar.


A six year wrong-diagnosis?
by: Aleee on Mon, Aug 25 2008
Facebook Twitter

I have been continuously diagnosed with chronic insomnia and variously treated for it with no real effect. Now, after six years and me constantly explaining that once i GET to sleep i’m ok (its the getting to sleep and getting up thats the problem at a socially acceptable time thats the problem) they’ve finally decided it might be Delayed sleep phase syndrome instead.

They still think it may be insomnia too, as my nightmares disrupt my sleep sometimes and I move about a lot in tandem to the actions in my nightmares (many a time have a accidentally swiped at my boyfriend in the night, thinking i was killing a zombie). Also, my long term depression and anxiety made specialists think it was insomnia.

But now I’ve read up on Delayed sleep phase syndrome, after they mentioned it to me yesterday (i’ve been researching it ever since), it sounds SO MUCH MORE like what I have. I sleep around 4-6am every night, and I get up at 12-1pm when I can. If I have to get up early (for others a ‘normal’ time) of say 8 or 9, I am totally bushed all day. I just want to sleep through the afternoon. But no matter how tired I am at night, I still won’t sleep again till 4-6am! I find it much easier to sleep in the mornings.

This is much more akin to the symptoms of Delayed sleep phase syndrome than your basic insomnia. I’m actually pretty glad it might be Delayed sleep phase syndrome, simply because I can then start working on curing it. I can’t fight a disorder if no one will tell me what it is!


Facebook Twitter

Comment on this

Comments
  1. Tue, Aug 26 2008
    Aleee, i wrote a note here about a month or so ago, i read your post and i think you were like me, you are now glad your problem has a name. i d...Read

August 2008

  • A six year wrong-diagnosis? - by Aleee - (Mon, Aug 25 2008)
    I have been continuously diagnosed with chronic insomnia and variously treated for it with no real effect. Now, after six years and me constantly explaining that once i GET to sleep i’m ok (its the getting to sleep and getting up thats the problem at a socially acceptable time thats the problem) they’ve finally decided it might be Delayed sleep phase syndrome instead. [more..]
  • Mom with DSPS teen - by BAT - (Thu, Aug 21 2008)
    I just took my teen to Johns Hopkins Sleep Center after 5 years of being sent from specialist to specialist and being told it was depression among other things. He has severe DSPS. [more..]
  • Teenager in New Zealand - by Luke - (Wed, Aug 13 2008)
    I’m a 14 year old teenager from Taranaki, New Zealand. Tonight I finally had had it with my terrible sleeping patterns, so I looked through all the sleep disorders on Wikipedia. I came across DSPS, and it matches my symptoms completely. [more..]
  • you guys know how i feel!! - by melanie - (Thu, Aug 07 2008)
    i just found this site tonight, i’t 2am and i’m up as usual watching my favorite tv shows, knowing i have to be up at 7am. i’ve read all the stories submitted here and you all have lived my life. [more..]

Archives:

  • 2009 January February March May June July August September October November
  • 2008 January February March April May June July August September October November December
  • 2007 May June July August September October November December
  • The submissions from our site visitors do not reflect the opinion of Healthcommunities.com, Inc. (HC). The Content of HC's sites is intended for informational and educational purposes only, and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. HC does not provide medical advice. Never disregard professional medical advice or delay seeking it because of something you've read on an HC website. Always seek the advice of your physician or other qualified health care provider regarding any medical question or condition. (See also: Website Disclaimer)