Living with Delayed Sleep Phase Syndrome

This section is a place to share stories about Living with Delayed Sleep Phase Syndrome.

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Completely stunned….
by: HM on Fri, Dec 14 2007

Am 35 years old and have had this condition since early teens…..just learned of DSPS this morning…..was shaking when I read the symptoms. Now only feel a mixture of sadness (for all the unnecessary pain and lost opportunities) and extreme anger (went to tons of doctors and sleep centers over the years- why the H*** didn’t anyone diagnose this for me???).

Have so many questions…does the light therapy work? Do you need to be awake for the session or can you just have it on for half an hour while you sleep in the morning? Can you qualify for disability benefits? Any other therapies I should know about?
Finally, does anyone know a doctor in the NY area who specializes in this disorder?

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Comments

Tue, Mar 25 2008
I have a lot of the same anger, but I think the answer as always is that it takes time to research this stuff and then even longer to get the word out...Read

December 2007

Completely stunned…. - by HM - (Fri, Dec 14 2007)
Am 35 years old and have had this condition since early teens…..just learned of DSPS this morning…..was shaking when I read the symptoms. Now only feel a mixture of sadness (for all the unnecessary pain and lost opportunities) and extreme anger (went to tons of doctors and [more..]
roommate moved out because of DSPS - by Holly C - (Wed, Dec 12 2007)
Hi, I’m currently a college student and with being so busy it’s almost impossible for me to go to bed early and be a morning person. I actually might have this disorder cuz I won’t go to bed till 4 am, and on my days off, not wake til 3 or 4 in the afternoon. The good news is that [more..]
so happy to find this forum - by elena - (Mon, Dec 03 2007)
I cannot tell you how amazing it has been reading everyone’s posts (i started tearing up a couple posts in). i have been told repeatedly by friends and family members since i was young that any sort of sleeping disorder i have is all in my head. Even when I [more..]

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