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Living with Delayed Sleep Phase Syndrome

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i found out 2 days ago that i had dsps for 3 years
by: lisa on Tue, Nov 13 2007
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hello, my name is lisa, im 16 years old and ive had dsps for almost 3 years now. i actually just found out that this was a common disorder with a name just a few days ago, until then i had no idea what was wrong with me.

usually at night i go to bed at around 2-3am or somtimes even later, no matter how tired i am from the previous day. this sucks because on school i have to wake up at 6:30, and i feel very bad and sick in the mornings. my mom yells at me every morning that i should wake up earlier and when i tell her that i cant wake up, she says ‘then go to sleep earlier.’ (now this ive heard so many times) ive told her and other people many times that i simply cant sleep early even if im tired and they dont understand.

i think what caused my dsps to start was when we started moving often. ever since i was 8, ive never been in one school for more than 2 years. it causes a lot of emotional stress for me. and not only do i change schools but i change houses more often(than schools). And the 3 countries ive lived in are all very different from eachother. about 2 years ago i started going to this bad school and hung out with a bad group of people, i stayed up late and did bad things. then i would try to correct my sleep by staying up the whole night and hoping to b so tired the next day that i would go to sleep at my desired time, however because i missed so much sleep, i would then sleep for 12-15 hours and wake up late the next day, then go to sleep late again.

sometimes in the morning i would drink many cups of coffee or redbull secretly to try to wake myself up. i was also stressed because i felt that in school people thought i was boring or stupid because i spaced out a lot and didnt talk because i was very tired.
also one summer, since there was no school, i started going to sleep at 5-6am, so i decided to find a new way to correct my sleep: by going every day a few hours later so that eventually i would go around the clock and back to the time i wanted go to sleep originally.

i was succesful in doing it, however it did not correct my sleep. it took about a week to do and it was in a way depressing (because it was dark and everyone was sleeping and everything was closed) now i realise this could have messed up my internal clock, and i could have gotton sleep wake syndrome (is that what its called when u go to sleep later and later each night?).
i dont try to correct my sleep to that kind of extent anymore, now i just try to go to sleep earlier every day. it works for about 2 days then i start going to bed again at around 2-3am. on an average school day i get about 4 or 5 hours of sleep. then on friday night, if i go to sleep at 2 or 3, i wake up at 2 or 3, then i get a headache. since i get headaches often i started to wonder why and i found out that when you dont get much sleep for a few days then suddenly get 12-15 hours of sleep you get headaches.

on weekends i dont get to go out much because everything is almost closed and i have to wake up when the sun is already gone. i get depressed that way.but it still feels good to finally sleep after 5 days of school. but then after i sleep for a long time on saterday and sunday, i feel so rested that i go to to sleep even later than 2-3am on sunday night to go to school on monday. somtimes i barely feel like sleeping at all until its almost time to get ready for school. getting a lot of sleep on the weekends actually makes the problem worse.

i have had problems in school for the past 3 years now like not getting good grades, they are getting worse and worse. i can feel myself in class dosing off, i find it hard to just listen to my teacher. also as i said i space out and when my friends tell me a joke or smile at me i have no idea whats going on and they probably think im stupid. also because of my grades and when the teacher calls on me to answer a question, i never know the answer because i dont know whats going on.plus i feel sick to my stomach at times and i feel weak from being tired (and when you cant sleep even from feeling this, it can get very fustrating. but then again it is at night that i am the most active)

on weekends i am always late to appointments and i dissapoint my friends everytime. just last saterday i got into a huge fight with my friends because i came 3 hours late to meet them at one of their houses. we had to make a film for class and i had the script and everything, so they had to wait for me to come, and i had to explain that it was just because i needed to sleep. In fact, that fight is why i looked up my sleeping problem on the internet. it was unbeleivable to find out about dsps, it was exactly what i was feeling for years and now i know its name! to people whom i tell my problem to, they tease me by saying i have insomnia. for a while i thought i had some form of it but now i understand that dsps and insomnia are very different.

i always used to be up on the computer and watching tv and listening to music at night and thinking that i just dont want to sleep, but now i do those things because i cannot sleep. my dad tells me it is because i think too much,or because i have too much stress from moving all the time and i think he is right, sometimes even though i was sleepy i would force myself to stay up just to finish my train of thought.

i think another reason why it started and why it still continues is because sometimes i WANT to stay up. but for stupid reasons. like i want to watch ANOTHER movie or i just want to surf the web, other times its because i dont want to go to school the next day so i stay up to ‘prolong the happiness’ of not being in school. even when i do these things im bored out of my mind but at the same time constently thinking and reevaluating every little thing, its annoying. because of this, i dont get any work done from school(homework), i dont exorcise to lose weight, i dont do the normal things that people do. this doesnt always happen though, and i have no idea if its normal or if what im writing is stupid right now. i have a feeling i have a few other disorders that may be causing more stress. like i make lists ALL the time to organise my thoughts, even though i am very messy, everything has to be organised, i think about every little thing. another thing is that i feel paranoid in a way…like when im away from school too long, it get this feeling like everyone is turning against me. somtimes im too afraid to open emails, and when i get mad at my friend for somthing, all im thinking about is that ill hav no one to sit next to in class so ill look stupid(i know it sounds really dumb, and its also dumb that i feel insecure about what people think of me)

anyways back to dsps,
my dad says i shouldnt go to a doctor for my dsps. it is common (especially for people in my age) and i do not need medical advice or anything like that. i beleive doctors make up names for everything so they can make money off of people who believe they are sick. i just hope i grow out of it.
i started a sleeping diary to record how much sleep i get every night. so far it reads: thursday night- 2 hours, friday night-8hours, saterday night-12 hours, sunday night-3 hours and today i got 7 hours so i am feeling pretty good, which means i probably wont sleep till maybe 2:30 tonight.
well its 7 o’clock now, i still have a long night (by myself because everyone is sleeping)
sorry if this was confusing to read, my thoughts were pretty random (it might not have been about dsps the whole time) but i had to tell to someone what i feel now that i know i hav DSPS.
i would reely like to hear from people with dsps too. dont be afraid to write a big story. i look forward to hearing from people(if this gets posted)


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Comments
  1. Thu, Dec 06 2007
    Hey Lisa, I just found this forum myself. I was diagnosed with dsps when I was 16. I was a junior prettymuch failing out of school b/c i couldn't ke...Read
  2. Thu, Nov 15 2007
    Hi Livingwith, congrats on finding out about DSPS and already taking action to prevent the effects from getting worse! Some of the things you were s...Read
  3. Thu, Nov 15 2007
    Lisa, I am 62 and have dealt with DSPS all my life. Both my adult kids have to cope with theirs, too. The good news is that you will find it easier ...Read

November 2007

  • Only just recently found out what is wrong with me - by Antonia - (Thu, Nov 29 2007)
    I’m 16 and for at least 4 years now I haven’t been managing to fall asleep before 3.00am. At first I believed I was spending too much time on the computer, as did my parents and so they banned me from it for at least a month. This didn’t effect my sleeping pattern at all, in fact it worsened the situation by [more..]
  • Lost My Shift Work Job To DSPS - by Don - (Mon, Nov 19 2007)
    I was employed by a company for almost three years till I was fired for having 11 lates under my belt. We rotated shifts every 2 weeks. 6am to 2:30pm then 2:30pm to 1am. We all know if you get off at 1am and you suffer from DSPS there is no going to sleep as soon as you get home. You need time to [more..]
  • total sleep problem - by md - (Mon, Nov 19 2007)
    ive had real bad sleeping problems for 4 years now, starting when i had clinical depression since ive been battling with dsps for 3 years at uni, i study pharmacy and its quite rigorous, in 1st year i forced myself to lecs regardless of amount of sleep and used alcohol to try to force sleep on, in the second year i totally didnt turn up at all-slept6am till 3pm-got my friends to sign me in lecs and just turned up to pracs, it was very hard to pull through the 12 exams but i pulled it off, i told myself i would sort it out over the summer hols, got a job starting at 7am-i tried so hard,even going in with no sleep but didnt work, so i finally gave in and tried sleeping tablets at start of 3rd yr of uni, but this gave me a sense of constant anxiety and was ironically worse than not taking them, so i stopped and have gone back to my old ways of not turning up-im also a light sleeper and live in halls which is very loud, so when i start to sleep-people are playing music, banging doors etc, so the sleeps totally broken and i look and feel really ill, i have put alot of hard work into uni, and will refuse to drop out, i try to vent my anger by going to gym/lifting weights but i know this is making matters worse probably, my parents and friends think im lazy and neurotic, the doctor doesnt listen and just gives antidepressents, the uni counsellor doesnt give any advice and recently people have been frowning upon my rough appearence(lack of sleep) as if im a drug addict or something, basically i dont know if i can pull this year off again-not turnin up 2 lecs andgoing into exams with no sleep etc and can anyone give any advice on this matter? [more..]
  • I can’t wake up… - by Leslie - (Fri, Nov 16 2007)
    I go to bed every night around midnight and sometimes cannot fall asleep until after 4am. Even if I fall asleep earlier, I do not wake to double alarms, and almost feel as if I’m comatose when trying to wake. [more..]
  • i found out 2 days ago that i had dsps for 3 years - by lisa - (Tue, Nov 13 2007)
    hello, my name is lisa, im 16 years old and ive had dsps for almost 3 years now. i actually just found out that this was a common disorder with a name just a few days ago, until then i had no idea what was wrong with me. [more..]
  • dsps turned into sleep wake syndrome - by Speedie - (Mon, Nov 05 2007)
    Hello, i’m dutch and 38, and have had DSPS since birth. According to my mother even as a baby i went to sleep very late, and woke up around noon. During my early teenyears i couldn’t fall asleep before 1 Am and sometimes i still wasn’t sleeping at 4Am. The alarmclock woke me up in time at 7:45 for school each morning, always feeling physically very tired, with a lack of concentration and lots of yawning during those first few hours. It turned into a daily fight to get out of bed. Using the weekends the catch up on lost sleep upto (12-13 hours) I have seen several different doctors about this problem during, but none came up with a solution that worked or had tried any type of medication. By the time I was 16, I was always missing early classes at school each morning, sometimes even the whole morning (when i didnt fall asleep before 4Am). I knew something had to change…. I wasn’t getting any help from the doctors back then, since there was nothing wrong with me. After smoking cannabis once, I found it helped me getting to sleep at a reasonable hour but still between 1 and 2 Am. (Smoking cannabis has several negative sideeffects, which WILL effect your life) During my early twenties the DSPS continued to disrupt my life, in the same manner as it did during my late teen years, going to bed between 1 and 2 Am each night, I was struggling to get out of bed each day to get to work before 9:30 feeling physically tired all day. I was still smoking cannabis but slowly needing more each day, to finally goto sleep before 2Am each night. I was 26, when things got worse… after a period of three months working upto 16 hours each day, working a 24-7 on-call duty with lots if irregular disturbance calls. I still couldn’t fall asleep before 2Am, sometimes even beeing awake untill far past 4Am. My 3 alarmclocks didn’t wake me up anymore untill i had between 11 to 12 hours of sleep. The effect of those buzzing alarmclocks was that after those 11 to 12 hours i woke up, each day with a continueous ring in my ear (like i had just been out clubbing) At some point after 6 months or so, I could hear my alarmclocks again after sleeping 8 hours each day. Eventho I had to sleep a minimum of 8 hours each day, it was becoming much harder to fall asleep before 2Am. I was smoking one maybe 2 joints each day before falling asleep. By the time I turned 32, I was combining drinking and smoking cannabis moderately daily, to keep falling asleep before 2Am. When I turned 34 I noticed some significant changes in my overall functioning. The amounts of alcohol and cannabis I was using to keep falling asleep turned into allmost passing out. Smoking 3 to 4 joints and drinking at least 2liters of beer each workday, upto extremes of 24joints and 2 to 5 liters of beer on saturdays and sundays, were becoming a bigger problem than my sleeping disorder. This is where I decided to kick both habits : quitting cannabis and alcohol on the same day. Unfortunately the problems with falling asleep returned as soon as i quit both substances. The irregular sleeping re-immerged, but slightly different than before it had changed from SDPS into the Non-24-hour Sleep Wake Syndrome. My clock was moving forward ever so slightly. Most weeks I woke up mondays at 10am, by the time it was friday i woke up at 11:30 or later. During the weekends I stayed awake longer to compensate back to the regular time. Right now I am 38 and somehow my bioclock has been steady for the last three months. It moves forward between 3.75 to 4 hours each day, and i’m awake for 20hours each day, afterwhich I fall asleep within minutes for exactly 8 hours and wake up by myself fresh as a fiddle. Fortunately my work isn’t time-restricted as long as i make the hours necessary. “Learn from other people’s mistakes, you don’t have time to make all of them yourself”. Hope this helps, Speedie (still sober) [more..]

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